Tuesday, June 5, 2012

Our "Special" European Vacation, 1

Kevin and I love to travel and see new places and experience new things.  Fortunately, we’ve been able to go to a lot of places and bring Aidan along with us too.  Thus, I thought it might be interesting to do a chronicle of one of our trips from the perspective of being Aidan’s mom and how it is to travel with a special needs child.  This is a chronicle of our trip to Europe, doing a 10-day cruise with stops in Italy, Greece and Turkey; then spending a week in Tuscany, then 3 days in Paris.

May 9, 2012
All of us, party of 7 (Kevin, me, Aidan, Connor, Grandpa & Grandma Leung, and Monica (Aidan’s home aide)), got to the airport early and we checked our 10 pieces of luggage in at the counter.  Mine and the boys’ luggage totaled 7 of these pieces.  But, probably 3 of the bigger pieces of luggage were Aidan’s gear and supplies.  I had to pack about 5 ½ cases (109 cans) of Aidan’s formula.  It’s not the kind of kid formula that you could just buy in a drug store, like Pediasure (which he previously took).  It’s more specialized and rare.  On other trips, when Aidan was younger, I could bring the powder concentrate formula, or we could buy it at our destination, but no such luck with his current formula (Nestle Pediatric Compleat).  We did look into shipping it over to Europe, but it was going to be much too costly, so I had to pack it in the luggage.  In addition to the formula, I packed diapers, bed pads, chair pads, the suction machine, the nebulizer machine, medications, swim clothes, everyday clothes, and other gear.  Anticipating that there would surely be parts of Europe that were not wheelchair accessible, I bought a soft backpack carrier so that we could backpack carry Aidan in the areas we couldn’t push him.  I got the Boba Baby G3 carrier, which was the highest rated carrier for bigger kids.  When we tried it out at home it seemed to work pretty well for Aidan.  I hope it does.  Luckily, it’s a soft carrier, so it packed down small and light. 
At the airport, we proceeded to make our way thru security.  I went thru with Monica and Aidan.  Kevin went thru with Connor and his parents.  I was armed with a doctor’s note for the feeding pump and formula to justify the need to get the liquids thru security.   As usual, Aidan had a male do a pat-down check on him and they had to swipe the stroller and the feeding bag and run it thru the machine and they all cleared.  Knock on wood – we’ve never been hassled about getting Aidan’s feeding bag and the cans of formula thru security.  Maybe we don’t look suspicious enough.  But, in my experience, LAX is one of the more careless airports in terms of security. 
We all made it thru security, had some time to kill before boarding so we headed to the lounge.  Fortunately, because the four of us were flying in the Virgin Atlantic’s Upperclass (sorta their First Class), we were able to also bring in Grandma, Grandpa and Monica into the lounge.  Wow! I only recently discovered the glory of this high-end type of waiting in these secret, tucked away VIP airport lounges.  There’s free food, internet, TVs, even showers?!  I know some airport lounges even have massage and haircut services.  What a completely plush way to wait for your flight?!  We had a full meal while waiting and looking down at the rest of the drones sitting in the uncomfortable chairs outside their gates.
We always push Aidan in his stroller/wheelchair all the way up to the plane, and gate check his travel stroller.  I bought another special lighter, collapsible umbrella type stroller (Maclaren Major) that folds and is light and also holds Aidan while seated in his Special Tomato seat.  I love that Special Tomato seat!  It’s probably the most versatile, cost-effective piece of equipment we have for Aidan.  We use that chair on the airplane, on the beach, in the hotel bathtubs and more.  It is so multipurpose and you can just hose it off with water and wipe it clean.  I had coached Monica on the procedures for the collapse and tear down of the stroller, diaper bag and the accessories.  Kevin will pull Aidan seated in the Special Tomato chair off the stroller, then one of us has to collapse the stroller down and take the diaper bag and accessories off and on to the plane.  Aidan gets seated in his Upperclass seat and we trickle in with all the stuff.
After we got in the air and leveled off, we folded down the Upperclass seat into a bed, and Aidan slept comfortably for just about the entire 10 hour flight?!!  In comparing the seats in Coach, where Monica and Grandparents were sitting; I could not imagine how excruciatingly uncomfortable it would be to have Aidan seated back there.  In fact, seated in his Special Tomato chair, Aidan probably wouldn’t even fit, or rather he’d be seated really upright which would be really tough for him to tolerate.  Surely, his knees would be rubbing up against the seat in front of him.  Considering how well Aidan and Connor both slept on our outbound flight in Upperclass, we may have to travel first class all the time, at least for International flights.  But, what a shame that its nearly 3 times the cost of a Coach fare?!  I know a mom that travels with her teenage special needs child and has to always travel first class because his special car seat wouldn’t fit otherwise.  I don’t think there is a discounted disabled or handicap airfare?
We arrived in London and had to get on our connector flight to Rome.  We boarded in the usual routine.  Aidan in his Special Tomato chair, but this time we got questioned a bit about it.  The stewardess wanted the Tomato chair to be able to strap around the airplane chair, but the straps were too short.  The straps couldn’t reach.  However, we did and always are able to buckle Aidan in on the lap with the airplane seat belt buckle.   Kevin strongly stated to the stewardess that Aidan always flies in this manner and stated that we had a doctor’s note for his own safety he had to be seated this way.  I had heard some horror stories from other parents about them getting really hassled about having their special needs child sitting in non-FAA-approved seats, even with a doctor’s note.  I was armed with our doctor’s note explaining that Aidan had cerebral palsy and needed to sit in his own chair for proper support.  I dare any airline personnel to try to hassle us or kick us off or take Aidan’s special chair away from him.  How could they even dare when I had a doctor’s note saying that he had to sit that way?  Any personnel looking to hassle us would have to bear the wrath of Kevin.  It’s not a pretty site.  Don’t hassle a lawyer and his special needs child while they’re traveling.  It won’t be pretty.

So we got settled on board, mostly trouble-free.  I sat with Aidan and Kevin sat with Connor and Grandparents and Monica sat towards the back.  I showed Aidan the emergency exit card and talked to him about where we had been and where we were going.  Apparently we mistakenly sat in the wrong seats.  But, fortunately it was an older lady traveling on her own and she just sat somewhere else.  The short flight went without incidence, except two occasions where Aidan nearly vomited.  Nothing unusual for him, but we’re now prepared with disposable vomit bags. I went on Amazon and bought 4 boxes of vomit bags.  They’re hugely helpful for travel.  Catch the vomit and just throw it away.  We used to catch the vomit in a towel, but then it was always a puzzle what to do with the dirty towel, which inevitably wouldn’t catch all the vomit.  So we are wiser now, with the disposable vomit bags.  Thank goodness for the all-encompassing Amazon.com!

As we started to deboard the plane, the older lady remarked to me, “You’re wonderful,” I believe it was a commentary to me and Aidan.  It was a nice acknowledgement for work that is no big deal to me…just caring for my boy and making the best of things.
De-boarding this plane turned out to be a tough one.  It did not pull right up to a terminal and didn’t have the covered walkway to the gate.  We had to walk down the stairs of the plane onto the ground.  This is always a little tricky with Aidan because we have to carry him down the stairs.  And Kevin usually does it, while I am trying to get ahead of him and get the stroller from the plane and set it up so that he could set Aidan down.  This got a little hairy because we had so many little bags and accessories from the stroller.  I, carrying the little bags, and wrangling Connor had to run and set them down in the shuttle bus and order Connor to not move, leave him unattended and then run back to get the stroller set up for Kevin.  But, he had to leave Aidan unattended to get the stroller and the bag, come down the stairs from the plane, leave it for me, then ran up to get Aidan and bring him down the stairs.  These types of airplane unloading are the most stressful and worrisome.  We’ve had that happen in the rain before in Anguilla.  Coming down the stairs carrying Aidan in the rain and pushing the stroller running into the airport terminal.  Not fun, not to mention Not Safe!
Well, we all made it together with all of our luggage and gear in tact.  Hello Rome!  Or shall we say Ciao, Roma!

We finally made it to the hotel in Rome.  Monica gave Aidan a bath using the Special Tomato chair (Love that chair!) and Aidan was set up on the sofa.  And fell fast asleep.  These sleeping arrangements worked out great because grandparents were in the adjoining room, and Connor was able to sleep on a sofa in their room. And Kevin and I did not have to share a bed with the boys nor did any of us have to sleep on the ground.  Nice and comfortable.  Tomorrow we all go see the Coliseum before we board the cruiseship.


  1. Hello Aidan's mom, I admired your attitude and courage so much, thanks for sharing Aidan's story. My 7 year-old only daughter was involved in a car accident with my two older sons, she is paralized due to the accident, and it has been very hard for our family but with examples like yours we find solace and hope because life doesn't end with the accident, it's just a different kind of life that we have now, but anyways I just wanted to let you know that your story is very inspiring, thank you.

  2. i;m so proud of you guys and touched by this. here I am with a perfectly healthy child and family. I stumbled on this while trying to psyche myself up to do better for myself financially. Im just lost for words. Thanks for sharing this and God bless your family and Aidan


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